Caitlyn Michiels, a student at William Floyd High School and founder of the nonprofit Caitlyn’s Vision, was recently joined by Suffolk County Legislator Jim Mazzarella and others to witness the H. Lee Dennison Building illuminated in green. This event marked Rare Disease Day in Suffolk County.
The ninth grader has been an advocate for children with visual impairments since being diagnosed with Anterior Bilateral Uveitis, a rare eye disease. Her advocacy led to the official recognition of Rare Disease Day on the last day of February in Suffolk County. As part of this initiative, the county’s executive offices were lit in green to raise awareness about rare diseases.
Caitlyn's efforts began at age 8 when she founded Caitlyn’s Vision. The organization focuses on fundraising and initiatives related to children's eye health. In 2019, she succeeded in having August designated as Children’s Eye Health and Safety Awareness Month in Suffolk County. She also contributed specialized light covers for visually-impaired students and advocated for inclusive playgrounds.
At 14 years old, Caitlyn continues her advocacy work with support from local officials like Legislator Mazzarella. “I was once someone with a rare disease who didn’t have support," said Caitlyn. "Lighting the building shows these patients that Suffolk County cares for and supports them."
Legislator Mazzarella praised Caitlyn's dedication: “Caitlyn is a true inspiration to young people everywhere.”
Rare Disease Day is an international initiative aimed at improving healthcare equity for those living with rare diseases. Since its start in 2008, it has become a global movement observed annually on February 28 or February 29 during leap years.
The choice of green illumination was made to honor Caitlyn’s Vision, which uses green as its signature color.
Caitlin has been part of William Floyd schools throughout her education.