The Stony Brook Neuromuscular Disease and Christopher Pendergast ALS Center of Excellence, an ALS Association Certified Center, is preparing for a truly unique fundraising event, the Iron Horse 4 Miler. This event is not your typical run, but a collective effort to raise funds for patients of all ages with neuromuscular disorders. It's a chance to make a difference in a picturesque setting, the Long Island Maritime Museum in West Sayville, on Thursday, July 4th, 2024, from 7:30 a.m. to 1:00 p.m.
Neuromuscular diseases can be complex, but the Stony Brook Neuromuscular Disease Center provides comprehensive diagnosis and treatment. They specialize in conditions such as amyotrophic lateral sclerosis (ALS or Lou Gehrig's disease), neuropathy, myopathy, myasthenia gravis, and more. Their support includes a wide range of services such as medical consultations, physical and occupational therapy, speech therapy, nutritional counseling, and psychological support. They are committed to ensuring that patients receive the best possible care.
"We are here to provide best-in-class care while decreasing symptoms, increasing mobility, and improving quality of life," said Dr. Simona Treidler, Director of the ALS program. "Our collaborative approach and multidisciplinary team ensure that patients receive support in all aspects of their conditions."
The ALS program at Stony Brook was recognized as the 34th Center of Excellence in the country in 2009 by the ALS Association. This certification is a testament to their ability to provide top-notch care and support for ALS patients and their families. At the Christopher Pendergast ALS Center of Excellence, patients benefit from a comprehensive 3.5-hour visit with specialists like occupational therapists, physical therapists, nurses, speech pathologists, and dieticians. This multidisciplinary approach enhances the success of therapies and ensures holistic support for patients.
"In addition to exceptional care, we offer educational support through frequent support groups and facilitated meetings for patients and families. These sessions cover a wide range of topics, from understanding the disease and its management to coping strategies and lifestyle adjustments. Our commitment extends beyond medical treatment to providing emotional and social support, making a difference in the lives of our patients." added Dr. Treidler.
The Iron Horse 4 Miler fundraiser, in partnership with the Long Island Maritime Museum, is an event and a platform for the community to come together and make a significant difference. It aims to raise substantial funds and awareness about neuromuscular diseases and the support available at the Stony Brook Neuromuscular Disease and Christopher Pendergast ALS Center of Excellence. Your participation and contribution to this vital cause are valuable, deeply appreciated, and can genuinely change lives.